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Evaluation of Genomic Applications in Practice and Prevention
Links

Quick links to categories below:


 Systematic, Evidence-Based Review of Genetic Tests

  • U.S. Preventive Services Task Force
    An independent panel of experts in primary care and prevention that systematically reviews the evidence of effectiveness and develops recommendations for clinical preventive services.

 

 Genetic Testing Regulation and Policy

 

 Genetic Testing Guidelines

 

 Genetic Counseling Services

  • National Society of Genetic Counselors
    Professional organization website includes consumer-oriented FAQs about genetic counseling, a “Find a Counselor” search function, and a fact sheet entitled “Five Questions to Ask Before Considering Genetic Testing”.

 

 Patient Advocacy

  • Genetic Alliance
    A coalition of hundreds of genetic advocacy organizations; website offers information about genetic conditions and numerous educational and other resources.
  • National Health Council
    The National Health Council promotes the health of all people, especially those with chronic disease and supports and advocates on behalf of the voluntary health movement.

 

 Professional Organizations Related to Genetic Testing

  • American Clinical Laboratory Association
    The clinical laboratory industry's leading advocate providing effective communication with Congress, regulatory bodies, other health care organizations and the public.
  • American College of Medical Genetics
    Provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases.
  • American Society of Clinical Oncology
    Professional organization committed to advancing the education of oncologists, to advocating for policies that provide access to high-quality cancer care, and to supporting the clinical trials system and the need for increased clinical and translational research.
  • Association for Molecular Pathology
    A not-for-profit scientific society dedicated to the advancement, practice, and science of clinical molecular laboratory medicine and translational research based on the applications of genomics and proteomics.
  • College of American Pathologists
    The leading organization of board-certified pathologists, serves patients, pathologists, and the public by fostering and advocating excellence in the practice of pathology and laboratory medicine.
  • Genetic Alliance
    A coalition of hundreds of genetic advocacy organizations; website offers information about genetic conditions and numerous educational and other resources.
  • International Society of Pharmacogenomics
    An independent, cross-disciplinary group of scientists/investigators who cover the fields of pharmacogenomics with special efforts on science as well as outreach (policy and education).
  • National Comprehensive Cancer Network
    An alliance of 21 of the world’s leading cancer centers, who working together to develop treatment guidelines for most cancers, and dedicated to research that improves the quality, effectiveness, and efficiency of cancer care.
  • Pharmacogenetics Working Group
    Pharmaceutical companies involved in pharmacogenetics/genomics research and setting standards for the industry; providing education for the regulators.

Note on websites affiliated with
EGAPP Stakeholders Group (ESG) members

ESG members represent a diversity of genetic testing stakeholder organizations, whose websites also may be of interest to visitors to this website.

For a complete listing of ESG affiliations, visit the ESG web pages on the website for the Centers for Disease Control and Prevention. 

 

 Educational Resources